A global registry to study CLOVES syndrome
The CLOVES Syndrome Registry
The CLOVES Syndrome Global Registry empowers people with CLOVES to join together, accelerate innovation and research and improve the quality of life for people living with CLOVES.
For more information about how to register, click here.
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?
For Patients
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.