Contact Us

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Contact Us

Sponsor

CLOVES Syndrome Community
6716 Eastside Drive NE
Ste 1-116
Browns Point WA 98422
clovessyndrome.org


Registry Contact

Lauren Beauregard
registry@clovessyndrome.org
(833) 425-6837


IRB

North Star Review Board
https://learningirb.org/
info@northstarreviewboard.org 


Social Media

CLOVES Syndrome Community | Facebook
CLOVES Syndrome Community (clovessyndromecommunity) | Instagram
CLOVES Syndrome Community (@CLOVESSyndrome)| Twitter
CLOVES Syndrome Community | LinkedIn
CLOVES Syndrome Community Newsletter


Visit the National Organization for Rare Disorders home page at rarediseases.org.

Institutional Review Board (IRB)

An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at info@northstarreviewboard.org.