CLOVES Syndrome Registry

We are pleased to announce the launch of CLOVES Syndrome Registry! The CLOVES Syndrome Registry creates a platform for patients around the world to strengthen their voices and share information about CLOVES syndrome, which causes Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi, and Spinal/Skeletal Anomalies and/or Scoliosis. CLOVES syndrome currently has no cure. Designed with the input of scientists and patients, this global resource will provide data for researchers to use to advance drug development and treatment options to help improve CLOVES syndrome patient care. Join now and let your data tell your story!

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